What a love! As Silke marries her Kalle, she is 48 and demented

On a sultry summer day, Silke and Kalle sitting in the parish hall and let you explain how this works, if it vows eternal love. The priest in sandals, Shorts and a Hugo Boss Polo says: “We all sing a song, say a prayer, then I believe a sermon, the 1. Letter to the Corinthians, of course, 13. Chapter. ‘Love is always patient and kind, it bears all things, believes all things, hopes all things, endures all things.’ A Classic!”

Silke nodded, Kalle nods. “That sounds good.”

Frontotemporal Dementia

“Then exchange vows, they kiss, we sing and pray, our father. Then I go out, and you.”

“Okay.”

“You Have Flower Children?”

“Yes, two. Rice and rose petals to throw.”

“It’s better to just roses. The rice we always get so hard to get out of the Church.”

“Okay. Only Roses.”

“How did you two meet?”

“Oh, it was complicated,” says Silke. Kalle explains: “In our first Meeting, Silke said to me: I have a husband. I have a child. And I’m sick.”

“Ah, Yes, okay. And how do you imagine your future together? Where do you see yourself in five years?”

Kalle looks at Silke, and Silke Kalle. Silke says: “I see us in five years anywhere. I wasn’t supposed to be here.”

Silke has lifted the many colorful pictures, the Doctors made up of your brain have made

That Silke hook-Naumann, 48, sits to this day in front of the priest, that she speaks, she laughs, she loves, she lives is a small miracle. That’s what she says. The Kalle says. The neurologists say.

One of them sits Silke, of professional in-house scientist to host, 15 years ago. Your doctor has sent you there. Because you forgot last time always change something. Silke, think nothing of it. A routine is a safe investigation. But now the neurologist tells you, and Silke understood only snatches of the word. Atrophy of the brain. FTD. Fronto-Temporal Dementia. Genetic Predisposition. What shrinks tell the doctor you actually: “your brain. It will continue to shrink. You will always forget more things. Until their memories fade. You will not recognize people. Also, are you particularly close to your family, your friends. And eventually you will die of this disease. Maybe in five years, with a bit of luck, in ten or twelve.”

Overwhelmed and alone

Silke doesn’t know what she supposed to do with all of this start. She is healthy and just 33. Dementia? In the age? Is there? You expects. 33 plus five years, that would be 38, plus ten 43, plus twelve 45. Silke thought. What happens in between, with me in all the days? I Wake up at some point and no longer know who I am? And who are the others who look at me pityingly? You ask yourself: do I Want to experience all of this actually?

Silke pushes aside the thoughts. She begins to write everything on a piece of paper. Appointments, Recipes, Memories. If she has food on the stove, an alarm clock, so that you forget it. But sometimes, she forgets the Alarm, and then it smells burnt. You tried everything, what are you doing to keep firmly in mind, and yet she puts sometimes a chicken thawing in the sink and asks a half hour later, what has the search there.

The family at home on the Sofa. Silke’s Doctors say it was a miracle that she’s alive.

Silke is overwhelmed. You told your Partner at the time of their illness. Of what is, and of what’s to come. The Partner separates from you. And Silke is overwhelmed and alone.

A few years later Silke gets to know a man. A, she talks about her illness and about the she speaks only reluctantly. In 2010, the two had a daughter, Letizia. Is just so happened. The two marry. Not really out of love. A marriage with much controversy and little bit of luck. A marriage that is not good. But it is better than a life alone, thinks Silke. Who else it out there for you?